C’s Appointment with the Children’s GI Doctor
We were on the road at 7:12am, slightly behind schedule. I was nervous that we were cutting it close to the appointment time considering we might run into traffic, but it is just so darn hard to get...
View ArticleBack to the Hospital We Go…
It’s been increasingly difficult to get C to cooperate for his tube feedings. Today, I was unable to administer one of his feedings because he cried, screamed and fought us. It’s not like we can hold...
View ArticleThe post in which I rant about C’s GI care.
A friend of mine posted these words for me today as I prepared for C’s follow-up appointment with the GI doctor: Just remember there is no more powerful force in the world than a mother fighting for...
View ArticleWe Did It!
To all who retweeted my inquiry to Children’s Hospital of Wisconsin, THANK YOU! You helped me to be heard. I cannot thank you enough for helping me to get help for my son. I’m not sure why I didn’t...
View ArticleGotta Have Faith
This is the chorus I’m singing! C’s staph infection is slowly clearing up, though we’ve been fighting during some of his feeds. He likes to throw things and then tries to whine, cry, get away from his...
View ArticleSmall Bumps in the Road: C’s Latest GI Appointment
C had a follow-up appointment yesterday at the Children’s Hospital of Wisconsin GI Clinic. Thankfully, we were able to transfer back to his original GI doctor. I am so glad. In about one hour...
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We Have a Diagnosis!
On Tuesday, C had a gastric emptying test done at Children’s Hospital of Wisconsin. Delayed gastric emptying is something that several of you mentioned to me as a possibility. I did some research,...
View ArticleC Has a New G-Tube!
Riddle me this: What is the problem with having three GI doctors within three months? Answer: You don’t know what the heck is going on! So we showed up at Children’s Hospital of Wisconsin this morning,...
View ArticleWords that shouldn’t be in my 2-year-old’s vocabulary: medicine, doctors, and...
Tuesday marked another day spent at Children’s Hospital of Wisconsin. We started the morning in ENT, where we discussed the neck x-ray that had revealed enlarged tonsils and adenoids. The second...
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